Notes on Living My Life

I will celebrate my 56th birthday on Friday, October 2.  Actually, I approach that day, not so much with a sense of celebration, but with a pensiveness, a deep seeded reflection on what I want to do with my life from here on out. My father never saw his 56th birthday. I recently passed him in time in the world and  I pledged that from that moment on out I would be striding through my days for the both of us. And so, I am contemplating changes. Disengaging from some things in my life, re-engaging with others, and starting some new journeys.

I’d like to find my sister Rebecca and see how she is doing. Our life paths were torn apart when our mother placed me in reform school only weeks after our father died. I was 15, Rebecca was 10. We reconnected briefly around the time of our mother’s 1992 suicide. I would like to see how she is doing. She is my sister and no matter what has happened, I love her very much.

I also plan on disengaging from anyone and anything that fuels their end of our connection in life with the hollow sounds of lip service. I have no time for that. Neither do they, but it is not my journey’s mandate to make them see that, nor could I if I tried.

As I contemplate and experience the fear that comes with making major changes, I go back to something Buddha taught. That so much of human suffering is rooted in our connection to material things, rooted in what we are taught to experience as status symbols, real measures of our worth: the cars we drive, our job titles, being a board member of this or that organization, and so forth. When it all comes down to it, none of these things truly fulfills us, or makes us happy. Moreover,  if we rely on any of them to give our lives buoyancy, we are, in truth, sunk. We have yanked the rug of human experience right out from under ourselves with a social slight of hand.

I want to live my life with all my heart and soul. Love those close to me with all I am and help as many people as I can discover that none of life’s wounds or traumas have reduced their value and worth. One of the things I love about the workshops I facilitate is every extraordinary person that is in them knows life happens to us whether we like it or not. They know it is how we manage it, the relationship we have with it that matters. No job title or status symbol ever protected anyone from real life.

Silence from New York’s DOH

A letter to a DOH official asking her to investigate how several million dollars of state taxpayer money has been paid to a project run by New York State contract employee Timothy J. Feeney who does not have the credentials he says he has has been met with silence.

A July 25 letter to Patricia Greene Gumson of the New York State Department Health has gotten no response. The letter, copied to others in and out of the DOH, asked Ms. Gumson to investigate how it was that Timothy J. Feeney received three five-year contracts with the DOH despite the fact he misrepresented his credentials. Was there a vetting process and, if so, what was it? It is critically important for the readers of this blog to avoid villainizing the DOH as a whole. There are quite a few honorable people working there and straightening things out while dealing with the ineffable web of bureaucracy is no easy task.

However, Mr. Feeney himself indicates that some in the DOH knew about the problems with his credentials. According to unsolicited e-mail this year to readers of my blog, some in the DOH knew Mr. Feeney did not have the college degrees he claims to have. In his e-mail, Mr. Feeney said, “The Department of Health, the state office responsible for the Neurobehavioral Resource Project, is well aware of my educational history, the source of my (college) degrees.”

For nearly 15 years now Mr. Feeney has headed up the Neurobehavioral Resource Project for New York State’s Traumatic Brain Injury Waiver. The Project is arguably the most powerful influence on the waiver across the state. There can be no argument  that the TBI Waiver is a blessing to the state and desperately needed as it affords many with brain injuries to live in the community. However, there can also be no argument that survivors of brain injury, their families and other loved ones, along with the hard working companies that provide waiver services across the state have a right to expect people to be who they say they are.

As readers of this blog already know, Mr. Feeney claims to have a PhD and Masters degree when he has neither one. The letter also asked Ms. Gumson to look into how it was that none of the three contracts that some might see as jerry-rigged didn’t require the person heading up the Neurobehavioral Project to even have a master’s degree.

In short, Mr. Feeney’s degrees were received from Greenwich University, a diploma mill located in Hawaii and California in the 1990s before moving its operation to Norfolk Island off the coast of Australia. Degrees from Greenwich have never been recognized as valid in the Australian mainland and have never been recognized as valid anywhere in the United States of America. Greenwich, not to be confused with the prestigious University of Greenwich in England, closed its doors in 2003.

Brain injury survivors, the families and other loved ones as well as waiver providers across the state deserve answers. Here are some but not all the questions that ought to be answered.

How productive has the Neurobehavioral Project been?

  • Are referrals to the project responded to, completed, and followed up in a timely manner?
  • How many admission holds were placed on Waiver Providers across the state at the direction of Mr. Feeney? 
  • How many survivors were tossed off the waiver by Mr. Feeney?
  • What has Mr. Feeney and the Project’s impact been on Medicaid dollars?
  • How many Medicaid dollars were spent based on the reasonable belief that Mr. Feeney was Dr. Feeney?
  • Would any Medicaid dollars been saved had Mr. Feeney not represented himself as Dr. Feeney?

Another letter to a DOH official way up the ladder is on its way and has been copied to a wide range of people. I have faith that the DOH will do the right thing. Mr. Feeney’s contract expires the 30th of this month. Were it to be renewed, or were some maneuver like awarding the contract to a company who would then hand leadership over to Mr. Feeney to happen, more folks would need to be taken to task.

It is hard enough living life with a brain injury, it is hard enough adjusting to the reality that a loved one has a brain injury, and it is no easy task providing quality services to those who live with a brain injury for providers who try to keep their companies afloat despite low reimbursement rates. To manage all these challenges only to find out one of the most influential entities in the state is not who they say they are is not only unjust, it’s immoral.

Shooting the Messenger

For many people it is easier to shoot the messenger than deal with the message – or so it may seem in the short run. In many cases, shooting the messenger only guarantees the content of the message will continue to pulverize your life.

If, like me, you are both inclined and often asked to help people, be prepared. You will get wounded from time to time. However, when you do get wounded, try and keep in mind that those inflicting the wounds are really reflecting how terribly difficult it is to absorb the problems they and their loved ones are facing. This does not mean that the wound will not hurt, nor does it mean that you surrender your right, should you choose to act on it, to let people know they wounded you, and, if necessary, disengage from them in life.

I have endured a few such wounds in my day and here is a case in point. During the time of my country’s bicentennial in 1976, it came to my attention that a man in my neighborhood had raped and sodomized about 10 boys, ranging in ages from 6 to 10. An accomplice held a gun on each child while this man had his way. Each boy was told he and his family would be killed if they said anything.  At any rate, I found out about this, learned the identities of some of the boys, met with two NYPD officers who were, simply put, great people, and decided to move on it. I can remember sitting in a car with the two officers as they told me I putting my life in danger by getting involved because the two men involved in the crime were likely involved in a murder and were more than capable of taking life to protect their life and their way of life. I was offered  the chance to back out.  I said no.

Anyway, the man was arrested, charged, posted bail and fled. He was later caught, convicted and jailed. One of the boy’s fathers was shot at in an attempt to silence him and it was clear a contract had been taken out on me.

During this experience it came to our attention that one of the boys who’d been victimized was the son of a neighborhood woman who had been very helpful in helping us talk with the boys. She was a social worker. When we met with her and gently let her know her son too had been victimized, she ripped into us with a fury. We, the police and myself, were called liars, opportunists, sons-of-bitches, and subsequently thrown out of the house. Painful, yes. But what would have been more painful for me, and I suspect, the two officers, would have been living with the knowledge of what her son had been through and keeping our mouths shut.

So, if you are one who is inclined to shoot the messenger, or if you are one who has done so in life, let me say this. You might, for the moment, spare yourself  some angst, but the truth in message delivered is still there and will do and likely is doing far more damage to you and yours than the messenger ever did. While shooting the messenger may, at times, be understandable, the people doing the shooting are still responsible for their actions. Period. End of story.

From Your Soul On Out

Ask me about the real thing relationships and I say spirits joined

Hearts and souls hand in hand stride for stride

Ask me about the real thing relationships and I say no leader

Just joined journeys in the sunshine of wonder

Some say dreams are for dreamers

Who have no place in the tick tick of daily life

I say those without dreams have hearts without air

Living lives that are lost to the heartbeat of love

Ask me about the real thing relationships and I say lips joined

In soft silk spirit glistening on glistens kiss

Ask me about the real thing relationships and I say breathe

In mindfulness deep and smile from your soul on out

 

Rhythms in Time

Breathe in the rhythms of your day, move forward in chin up stride

Cause every day’s independence day and you can have both humility and pride.

Love songs sweet on mirrored lips get sung for you

Dreams once thought gone might just turn out to be true

Breathe in the rhythms of your time and kiss the ones you love

Think your thoughts in soft shoe shuffle with a wink from above

Sad eyed wonders need hold you back no more

Sing on my brothers and sisters to tomorrow’s waiting shore

Breathe in the rhythms of your life, hold back for no one

Yours is equal footing and knowing that is when you’ve won.

Love is here within and without each and every day

So breathe deep my friend, love for you is here to stay