KAC files grievances with NY State agencies

The Kahrmann Advocacy Coalition this week filed formal complaints with the New York State Department of Health and the New York State Commission on Quality of Care for People with Disabilities after receiving reports that agencies overseeing the Traumatic Brain Injury Waiver in Long Island and New York City are taking a dangerously long time approving treatment plans for waiver participants. Moreover, it appears these agencies are often non-responsive to calls from waiver participants and are not providing the services they are required to provide while participants are waiting for services.

If these reports are accurate and it certainly appears they are, the behavior of these RRDCs are putting the lives New Yorkers with brain injuries at risk. Both the DOH and the CQC have indicated they will investigate these complaints.

It is important to note that this is not the first time KAC has warned DOH as well as the Traumatic Brain Injury Services Coordinating Council that the lives of waiver participants are being placed at risk.

The RRDC for Long Island is  Self Initiated Living Options, Inc. Suffolk Independent Living Organization (SILO) locate at 3680 Route 112, Suite 4 in Coram, NY 11727. Their phone number is (631) 880-7929. The RRDC for New York City is Visiting Nurse Association Health Care Services d.b.a. VNA of Staten Island located at 400 Lake Avenue in Staten Island, NY 10303. Their phone number is (718) 816-3555.

Messages have been left with both organizations voicing concerns over these troubling reports.

5 thoughts on “KAC files grievances with NY State agencies

  1. Pete thanks for staying on top of this!! Yes, I would hope that all the great servant-hearted people in the waiver services would act in a timely way. I only hope that your group and the voices of disappointed citizens will make an impact on how they behave!!

  2. Lets hope that they will seriously investigate these complaints. In addition they should issue a letter detailing their conclusions and their plan of correction if warranted. The issue with the late plans continous to be a major concern for participants and the providers alike. Particularly, in NYC there are loads of late plans that are just sittiing in the RRDS's emails or desks. The other issue you mentioned about availability is also significant and not just NYC or LI. I dont know those regions but I do know first hand that the TBI RRDS in Lower Hudson Valley Lisa Howard, is missing in action – MIA – not making fun at some our brave men and women in our armed forces. She rarely picks up her phone, she is never in her office and she rarely responds to any emails from providers. The issue of late plans is also relevant in this region as well. This particular RRDS acts like the queen of her kingdom ruling the peasants namely providers and participants and providers or participants are afraid to confront her. This is beacuse there is no accountability from her superiors – the director of the RRDC or the agency or DOH who ultimately is responsible for the operation and performance of the RRDC. I propose that the DOH conducts semiannual or annual reviews of the RRDCs performance and these reports be made available public to all providers and participants and their families. Part of this performance evaluation should include satisfaction surveys from providers and participants. More facts to follow…

  3. We have similar issues with the TBI RRDS in Lower Hudson Valley. Especially the issue with the late plans and nonexistant availability or responsiveness of the RRDS is a major problem in this region as well. I hope DOH addresses these issues. I know providers have advocated for years for the DOH to obtain satisfaction surveys with the RRDS. Finally some voices advocating for these changes.

  4. I have seen a huge difference in the turnaround from Long Island RRDC. The staff there are always available and personable. The plan reviews and approvals have been up to date recently. I have heard good things about the most recent RRDS who took over and how he changed the rapport with the participants and the providers.


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