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About Peter Sanford Kahrmann

Writer, disability rights advocate, civil rights advocate.

DEHUMANIZING ASHLEY

The parents of a nine-year-old Washington State girl say their decision to sterilize their daughter Ashley and medically restrict her growth will better assure her safety and quality of life. No matter how you hold their decision to the light, the view is tragic.

Ashley lives with a condition called static encephalopathy. According to the National Institute of Health, “Encephalopathy is a term for any diffuse disease of the brain that alters brain function or structure.” Static simply means the condition is not deteriorating. In other words, Encephalopathy is a catch-all phrase.

There can be no doubt that the ethical dilemma swirling around this controversial treatment, performed at Children’s Hospital in Seattle, is in large part linked to society’s failure to make sure people with disabilities are guaranteed the same level of human rights as everyone else.

Ashley cannot walk, talk or swallow food and is cognitively impaired. Her parents are her primary caregivers. In their blog her parents say the treatment “includes growth attenuation through high-dose estrogen therapy, (a) hysterectomy to eliminate the menstrual cycle and associated discomfort to Ashley, and breast bud removal to avoid the development of large breasts and the associated discomfort to Ashley.” As a result of the treatment, the parents say Ashley will “be a lot more physically comfortable free of menstrual cramps, free of the discomfort associated with large and fully-developed breasts, and with a smaller, lighter body that is better suited to constant lying down and is easier to be moved around. Ashley’s smaller and lighter size makes it more possible to include her in the typical family life and activities that provide her with needed comfort, closeness, security and love: meal time, car trips, touch, snuggles, etc.”

Her parents call Ashley their “pillow angel.”

Whether you agree or disagree with Ashley’s parents and their medical team, there is something disturbing, even barbaric, about sterilizing and altering a child’s growth in order to make life easier for caregivers and allegedly assure the child’s quality of life. It is an honest but misguided belief that the removal of Ashley’s breast buds will significantly diminish the chance of sexual abuse. The absence of breasts will not deter pedophiles and other sexual predators.

It seems to me that the response (pro or con) to the unsettling treatment chosen by Ashley’s parents and medical team is in large measure rooted in a more sinister reality: the continued dehumanization of people with disabilities. What does it say about a society that apparently believes it can best protect a child from sexual assault by sterilizing the child and removing some body parts? What does it say about a society that would rather stunt a child’s growth than provide the community services the child and family deserve? What it says is this. We live in a society still wedded to a social tenet that is simple and wrenching: the greater the damage to a person’s physical and/or cognitive functioning, the less human they are. After all, the parents of a child paralyzed from the waist down would never be allowed to have the child’s legs amputated simply because it would be easier for the child to be physically managed and easier for the child to maneuver a wheelchair in tight quarters because there would be no leg rests.

A report by Dr. Daniel F. Gunther and Dr. Douglas S. Diekema, members of Ashley’s medical team, says “Achieving permanent growth attenuation while the child is still young and of manageable size would remove one of the major obstacles to family care…”

The words that trouble me most here are the words, manageable size. While the words address Ashley’s physicality, they miss her humanity, and that is the greatest tragedy of all. When we lose sight of another’s humanity, we are all lost.

FORD WOUNDS ANOTHER NATIONAL NIGHTMARE

President Theodore Roosevelt said, “Patriotism means to stand by the country. It does not mean to stand by the president.” President Gerald R. Ford knew this, believed this and lived this. The current White House doesn’t have a clue.

In 1974 America was staggered and battered after 11 years of trauma: the heartbreaking and often bloody civil rights movement, the assassinations of President Kennedy, Dr. Martin Luther King Jr, Robert F. Kennedy and Malcom X, the carnage of Vietnam, the Watergate scandal, and President Nixon’s resignation. Mr. Ford took office and in 30 days pardoned President Nixon and in the next breath gave amnesty to 200,000 American men and women who had evaded the Vietnam draft. Both decisions were necessary for the country’s healing and both decisions likely cost Mr. Ford the 1976 presidential election.

Mr. Ford’s integrity, honesty and courage brought an end to our national nightmare 33 years ago and now, in death, he may be helping us end another nightmare; the Iraq War, a war based on lies, misinformation and greed. As a result, we are again a country battered and bruised. We have a White House incapable of admitting human frailty or error. Thousands of Americans and Iraqis are dead and wounded and more carnage is on the way. American oil companies have made record profits while hard working Americans have had their wallets and purses drained at the gas pumps. Few, if any, were surprised when gas prices decreased before the election and increased after the election.

Mr. Ford, and recently the 10-member Iraq Study Group, prove it is possible to live the content of TR’s country-first mandate. Just ponder the composition of the ISG: James A. Baker III, Lee H. Hamilton, Lawrence S. Eagleburger, Vernon E. Jordan, Jr., Edwin Meese III , Sandra Day O’Connor, Leon E. Panetta, William J. Perry, Charles S. Robb, and Alan K. Simpson. That is a diverse group to be sure.

Unlike many, if not most of America’s leaders today, Mr. Ford put the good of the country ahead of his party and his political aspirations. He did not ride the intoxicating wave of greed or power-hunger. Instead, he strode the solid ground of human decency.

In his eulogy today in Grand Rapids, Michigan, historian Richard Norton Smith said Mr. Ford “never turned to a focus group for his convictions” and understood that “the greatest of all freedoms is the freedom to be one’s self.”

In his eulogy to the man who had become his close friend, former President Jimmy Carter said no words were more fitting than the ones he used “almost exactly 30 years ago. I want to thank my predecessor for all he did to heal our land.”

Amen.

NY TIMES BLIND TO FORD’S LEGACY

I take no pleasure knowing that in the short life of this blog this is the second time I am taking the New York Times editorial page to task. I love the New York Times. It has been part of my life since I was a little boy when my father would pull the car up in front of what we called the news store in Pearl River, New York. I would scamper out, run in, buy the Times and his cigarettes, and run back to the car. I think I ran everywhere back then. The concept of walking places was entirely lost on me. What was the point of walking? If you ran, you got where you wanted to go faster!

In November I took the NYT editorial page to task for saying “While there are plenty of underprivileged in the current (military), at least they are there by their own choosing”. The editorial page was arguing against New York Representative Charles Rangel’s proposal to bring back the draft. Mr. Rangel’s proposal was rooted in the accurate assessment that the all-volunteer army leaves most of the fighting and dying to the underprivileged while the well-heeled and well-connected get a pass. The assertion that the underprivileged are in the military by their own choosing missed the fact that when you are underprivileged your options in life are horribly limited.

Today, in a lukewarm editorial on President Gerald Ford, the Times displays a bit of arrogance and stubbornness. Since Mr. Ford’s death, many on both sides of the aisle have, with great justification, praised his decency, integrity and political courage. Thirty days into his presidency he pardoned President Nixon and in the next breath gave amnesty to 200,000 men and women who had dodged the draft. Both decisions helped heal a country desperately in need of healing. In 1974, the year Mr. Ford took office, the country had been through 11 years of pure hell, starting with the 1963 assassination of President Kennedy, the often bloody and heartbreaking civil rights movement, the Vietnam War, the assassinations of Dr. Martin Luther King Jr, Robert F. Kennedy and Malcom X, the Watergate scandal and President Nixon’s resignation.

Many who disagreed with the pardon at the time, this writer included, have come to recognize the wisdom of Mr. Ford’s judgment. Mr. Ford knew this country, like a horribly battered and bloody fighter, needed time to heel. And while the pardon brought a severe backlash of criticism, and probably caused Mr. Ford the 1976 president election, history has proven him right. Unlike some recent presidents, Mr. Ford had the courage and integrity to do what all our presidents should do, put the country ahead of their political aspirations.

Yet today the New York Times editorial page says Mr. Ford’s “legacy is limited” and reaffirms its 1974 stance that the pardon was a mistake because “the nation is strong enough to endure almost anything but burying the truth.” This is true, kind of. However, the nation knew the truth. Moreover, just because a battered and bloody nation could have endured a Nixon trial doesn’t mean it should have been forced to endure yet another painful and damaging experience. The New York Times was, like me and many others, wrong then. Unlike me and many others, the New York Times is wrong now. It fails to recognize the country had suffered enough. To his credit and our country’s benefit, Mr. Ford did recognize this. He knew that the country, like an individual, needed and deserved time to heal. There is nothing limited about the legacy of a man who reminded us that we truly are a nation of the people, for the people and by the people – not a nation of a misguided few.

THE COURAGE OF HONESTY

The American people deserve an honest media without agenda. However, if members of the media have an agenda, have the guts to be honest about it. The American people deserve the courage of honesty from those in the political arena as well.

Not a chance.

In late November, Republican strategist Ed Roberts pointed out that Barack Obama’s middle name was Hussein. Shortly thereafter, a hypocritical Chris Matthew’s of MSNBC’s Hardball, asked Roberts why he was pointing out Obama’s middle name. What Matthews did not say, according to Media Matters, was that he, Matthews, was the first to point out Obama’s middle name during a November 7 edition of Hardball. The poison of dishonesty does not stop there. Just recently CNN reporter Jeff Greenfield warned that Obama’s casual style of dress would tempt people to compare the senator to Iranian President Mahmoud Ahmadinejad, another causal dresser.

Roberts poo-pooed the seriousness of his utterance, Matthews dodged responsibility for his, and Greenfield said he was joking and even went so far as to imply he had no idea anyone could misunderstand his “joke”. “How could anyone possibly take such analysis seriously? Or consider it a ham-handed effort at character assassination?” Mr. Greenfield wrote on the CNN website. Well, anyone with an IQ in a least double-digits much less three, Mr. Greenfield.

According to Media Matters, Mr. Greenfield has yet to apologize “for his role in doctoring a video clip of Hillary Clinton to portray her as a liar.” Mr. Greenfield’s claim he had no idea his observation would have such an impact reveals three possibilities, he is the only person in history whose IQ and life experience can leave and return without warning, he is a liar because he doesn’t give a damn or he is a liar because he doesn’t have the courage to be honest.

Meanwhile, all of the people referenced above (save forObama and Media Matters) insult all American people. Tell us the truth. Most Americans I know understand when someone makes a mistake or shoots from the hip from time to time. Most Americans like and admire it when they see someone with the courage to apologize. White House Press Secretary Tony Snow is a case in point. Recently he accused NBC reporter David Gregory of asking a partisan question. It took Mr. Snow a matter of days to acknowledge his misstep and apologize to Mr. Gregory. Mr. Snow received well deserved praise for his honesty and courage.

You would think Mr. Greenfield, Mr. Matthews and Mr. Roberts would enjoy similar praise. Then again, it requires the courage of honest integrity to earn that praise. It seems Mr. Greenfield, Mr. Roberts and Mr. Matthews have not been in the same room with courage for quite some time. Not only am I not joking, I am being entirely honest.

SCARED FOR MY COUNTRY

Written December 13, 2006

I am scared for my country.

Most of me believes the backbone of our democracy is stronger than any misguided leader. Today I heard our president in a press conference say “I want to hear from ideas and opinions.” I, for one, can’t remember the last time an idea or an opinion talked to me but then again I’m not the president. I am just an everyday guy who is limited to ideas and opinions expressed by, well, people.

I listened to our president say he had a “fruitful discussion about how to secure our country” with members of the Joint Chiefs, the vice-president (God help us all) and others. The president said our military was “taking the fight” to the enemy.

As I listened to him I felt and thought several things: frustration at the man’s inability to admit a mistake or admit a wrong, as if to do so would be an act of weakness. If admitting a mistake or a wrong is an act of weakness, Mr. President, how come you can’t do it?

I listen to him and I am heartbroken. I am heartbroken for the American men and women who have been killed and wounded and soon will be killed killed and wounded. I am heartbroken for the Iraqi men, women and children who have been killed and wounded and will be killed and wounded. And I am heartbroken for all the families.

I am angry too. We were attacked by Al Qaeda and their leader was and still is Osama bin Laden. When we were attacked we by and large had worldwide support when it came to going after Bin Laden and the Taliban. American people of all political persuasions were joined in their desire to lash back at and bring to justice those who slaughtered 3,000 innocents. But here is the tragic reality of the day; those that killed 3,000 innocents are an afterthought and Iraq is, by any measure, a disaster. We have just had a real bi-partisan report offered to our country by the Iraq Study Group and already I see the president discarding it.

I am scared for my country. My country has a president who wants to hear from ideas and opinions. I wish he wanted to hear from the people. After all, the American people are the ones that deserve to be heard. After all, it is their children that are being killed and wounded.