Category Archives: Belvedere Brain Injury

Belvedere Says No to Survivors’ Coalition

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I’d like to say I’m  surprised that the Belvedere Brain Injury Program owned by John Mccooey will not let the Kahrmann Advocacy Coalition, founded by brain injury survivors, the very people Belvedere claims to serve, meet with fellow survivors in the Belvedere program, but this has always been an honest blog and I see no reason to change that.

Of course, preventing a coalition founded by those you claim to care about from meeting with survivors who participate in your program is a red flag if ever there was one. But I am not surprised. I worked for and with Belvedere for quite some time. I actually interviewed with them on 9/11. At first it was a troubled provider but it appeared as if owner John Mccooey truly wanted to develop the best possible services for the brain injury survivors in the program and it actually became a really good program, until, that is, Belvedere opened a substance abuse component. When that happened, everything changed.

Michael Loiselle who headed up and, to my knowledge, still heads up the substance abuse program, was about as dictatorial as one can be. More than once I heard him inflict one of his favorite expressions, “Too bad, so sad,” on a survivor who was talking about some tough time they were having. Moreover, Mccooey, then and now supports Loiselle even though Loiselle and the entire substance abuse program dictates to survivors what workshops they will or won’t attend. Never mind that the TBI Waiver, governed by the New York State Department of Health demands that the program be driven by the survivors. Loiselle and Mccooey couldn’t get me out fast enough. In fact, I once lightly touched Loiselle’s shoulder while talking with him and like a whiny little boy he ran to upper management and charge me with workplace harassment because I touched him. Not surprisingly, an investigation determined that he was, well, wrong.

As for John Mccooey, I’d call him a wolf in sheep’s clothing but I happen to like wolves and see no reason to insult them by dragging them down into the filth.

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Criminalize Dehumanizing People with Disabilities

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If you deny someone their equal rights you deny them their freedom, and for that you should face criminal charges.

This happens all to often in the world of disability. I’ve seen it, endured it, fought it, and will fight it until the end of my days.

If you are going to treat someone with a disability as if their humanity is less whole than yours, you should be charged with a crime. If you are going to treat people with disabilities as if each and everyone of them is a cottage industry for you to profit from, same thing, criminal charges should be brought to bear and if you are convicted you can do the community service by going to jail. In other words, leave the community.

I hear many things from many people on many fronts, particularly in the world of people like me who live with brain injuries. Sometimes I can reveal my sources, sometimes not. Sometimes discreetness is the wisest choice, sometimes in your face is. I am willing to play both cards if I genuinely believe doing so will further equal rights and or hold accountable those who willfully deny others their equal rights.

Here is an example that typifies a lot of what goes on. I know someone who lived with a brain injury. She is extremely bright and nobody’s fool. Were she in a coma she could likely outwit 99 percent of the people I know. Anyway, she was attending a day program and made it known she wanted to get a part time job. So the program tells this woman that they will clear out a little office space they have and set it up with candy and soda that she can sell a few hours a week and she can keep some of the money. This woman said to me, “Do they think I’m stupid or what? Do they think I don’t know that the only reason they’re offering this is so they can bill for the hours I’m in selling their damned candy?” In other words, all this Albany-based provider cared about was not losing the money they would lose if this woman had a part time job in the, wait for it, community!

There was a time in life when I believed that in everyone’s heart of hearts there rested an active or untapped reservoir of compassion for others. Wrong. There are plenty of people that simply don’t care, not at all. And they are the ones that need to be exposed,  criminally charged when possible, and given a leave of absence from the community, and if not the community, a permanent leave of absence from working in an arena designed to help people reach their maximum level of independence.

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Ramblings From a Writer & Advocate

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My blog “pen” has been still for a time now and I am pulled back to this page because I feel a kind of welcome connection to the more than 1,500 people that read this blog every month. Any writer not humbled by that kind of attention is a fool. And, I’ve missed you all.

I’ve been fairly active. I’ve written three short stories recently and am, dare I say it, fairly pleased with them. I eyed the possibility of trading in my car for a new one and was reminded that if  you want honesty in your life, you’re not likely to find it in a car dealership.  But most on my mind, at the moment, is a recent presentation by several healthcare providers claiming to be experts in helping those who live with the dual challenge of substance abuse and brain injury. I don’t know all the players but two of the presenters were Albany-based Belvedere’s Brain Injury Program and Northeast Center for Special Care in Lake Katrine, New York.  One of the people from Belvedere explained that Belvedere’s counselors have sessions with survivors in their cars for privacy.

Those I talked to who attended were not only not impressed, they were horrified. Survivors of brain injuries were referred to as “those TBIs” – TBI stands for Traumatic Brain Injury – and one presenter said a survivor he knew had been a garbage man before his injury and so was probably special ed anyway.  No matter how you hold that disgusting observation up to the light, it is packed with bigotry. Survivors were talked about like they were products and, well, less than human.

Do these fools not realize that when you say all TBIs you’re spewing the same kind of bigotry as the voices who say all Blacks or all Jews or all Latinos or all gays or all lesbians? And don’t miss that the people who offered these presentations were picked by their company owners and leadership to represent their companies and, one would suppose, their views. Troubling, very troubling.

Anyway, it is good to be back. More soon. My best to you all.

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Caring for Appearances and $ Only

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I have lived with a brain injury for more than 25 years now as a result of being held up and shot in the head in 1984. Since then I have met people who care and don’t about those of us who live with brain injuries. I’ve also met those successfully manipulate many, myself included, into believing they do care when in fact they don’t.

I can tell you from firsthand experience that those who work for the Brain Injury Association of New York State care with all their hearts and souls. They have helped me through some tough times over the years and I can honestly say I love the people who work there. I am proud to be a member and would tell anyone who lives in New York they are making the world a better place by becoming a member.

I know people in the New York State Department of health who care with all their might. I recently met with two DOH official who care and then some, so be careful not to write off government agencies and or employees as being absent compassion and caring. Moreoever, I know healthcare providers in my state and other states care with all their might.

I also know healthcare providers who don’t care. Who see us as a means of making money and or as a means to inflating their dysfunctional egos by seeking to and, in too many cases, succeeding in controlling our every move.

In my years of working with people with brain injuries I have worked with two company owners who both put on quite a show of caring. One, who has since passed away, I’ve come to realize really did care. Sadly, very sadly in fact, his personal demons got in the way of his acting on his compassion in a healthy way. The second owner continues to put on quite a show of caring but in fact continues to operate a program in which participants rights are too often not respected.

I was forced out of the latter owner’s place because I would not be quiet when I saw people with brain injuries being denied their rights. Do I hate this owner or the one referenced earlier? No. I hate the latter’s behavior and feel sorry for the arrogance that blinds him to the fact life happens to him too whether he likes it or not – just like the rest of us. Were he wounded in life, I’d help him.

Anyway, one day at a time.

I’ll continue to expose those who misstep on the human rights front and support those who don’t, and, thankfully, there are many people in the latter group.

Living With Brain Injury – Part V: Where Are the Employees?

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It would be interesting to learn how many people living with brain injuries are in management positions  in the companies providing services to people with brain injuries living in the community. Not many. I can think of one provider that has an individual with a brain injury in a management slot.

The last company I was affiliated with was the Belvedere Brain Injury Program in Albany, New York, and, sadly, in Syracuse too. In the end, not a pleasant experience. Once their substance abuse program got underway and a plethora of survivors began to complain they were being denied their right to choice, I began advocating for them. I was soon told to leave.  I have no reason to believe conditions have changed and  no one running the show  has a brain injury. But this affront aside, the larger picture begs the question, how many people with brain injuries are in management positions in companies like Belvedere? Given that the answer is hardly any, the next question is,Why not?

Is one of the reasons why not may be that many still cling to the belief that those who live with brain injuries can’t do the work? Not so. Bob Woodruff, as good and decent a man as God ever created, lives with a brain injury and is back at ABC News dazzling in his work as always. Is another reason that some companies know that someone with a brain injury might not take kindly to the way survivors are treated by the company?  It’s kind of like creating a group of companies to provide services for veterans and not having any veterans on staff.

Keep in mind, there is such a thing as warehousing in some community-based programs.

Wouldn’t you think that any company providing services to people living with brain injuries would work hard to  get  people with brain injuries on staff because, deep breath now, they might be well suited to tell you what it is like living with a brain injury and thus help you design a more effective program?

Perhaps I’m not the one to ask. After all, I have a brain injury.